Join HeartShare | AMPHF
AMPHF · HeartShare Program

Join the HeartShare
Community

Be part of a nationwide effort advancing our understanding of heart failure — helping researchers discover better treatments for everyone.

Get Started Today
Participation Options

Ways to Contribute

Choose the path that fits your life. Both make a meaningful impact on heart failure research.

Most Common

Registry

Share your health information through secure online surveys — entirely from home, on your own schedule.

What's Involved
  • Complete surveys about your health and daily life
  • ~30–45 minutes to start, then 5–10 min/month
  • All done online at your convenience
  • No in-person visits required
Who Can Join
  • Age 30 or older
  • Diagnosed with heart failure or at risk
  • Able to complete online surveys
In-Depth Research

Deep Phenotyping

Contribute more detailed information through in-person visits and comprehensive assessments at a medical center near you.

What's Involved
  • Visit a participating medical center
  • Complete detailed health assessments
  • Provide blood samples and other tests
  • Optional: contribute tissue samples
  • Follow-up visits over time
Who Can Join
  • Age 30 or older
  • HFpEF diagnosis required
  • Able to visit a participating medical center
  • Meet additional criteria set by study team
Deep Phenotyping has more restrictive eligibility. Most participants join through the Registry.

Not sure if you qualify? Contact our study team — we'll help.

Process

How to Join

Getting started is straightforward. Here's what to expect at each step.

1
Express Your Interest
Fill out a brief form online or call us. We'll walk you through the options and answer any questions.
2
Learn About the Program
We'll send you detailed information about what participation involves and what to expect throughout.
3
Complete the Consent Process
Review all information at your own pace and ask any questions. Sign consent forms when you're ready.
4
Start Participating
Begin your first survey or visit. Our team will guide you every step of the way.

Common Questions

Everything you need to know before joining.

How much time does it take?
Registry participants spend about 30–45 minutes on the first set of surveys, then only 5–10 minutes each month after that. Deep Phenotyping involves a two-day initial visit, with shorter follow-up visits scheduled yearly.
Will I be compensated?
Registry participants are entered into a quarterly raffle for gift cards for completing surveys. Deep Phenotyping participants receive compensation for each visit. Additional compensation may be available for travel expenses.
Is my information private?
We take every precaution to secure your health information. We follow strict privacy rules and only share de-identified data with approved researchers.
Can I stop participating?
Yes — you can withdraw at any time for any reason, no questions asked. Your decision will never affect your regular medical care.
Will I get my test results?
Deep Phenotyping participants receive clinically relevant test results. Registry participants don't receive individual results, but everyone can get updates on what the community is learning on our website.
Locations

Participating Medical Centers

Deep Phenotyping visits take place at these leading institutions across the country.

Northwestern University
Chicago, Illinois
Mass General / Brigham and Women's
Boston, Massachusetts
Mayo Clinic
Rochester, Minnesota
UC Davis
Sacramento, California
University of Pennsylvania
Philadelphia, Pennsylvania
Atrium Health Wake Forest Baptist
Winston-Salem, North Carolina
Johns Hopkins University
Baltimore, Maryland

Ready to Make a Difference?

Join thousands of participants helping advance heart health for everyone. Your contribution matters — every survey, every visit, every answer.

Join HeartShare
amphf.org  ·  HeartShare Program  ·  Contact Us